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  #41  
Old 07/21/11, 02:34 PM
earthkitty's Avatar
 
Join Date: Mar 2011
Location: KS
Posts: 1,219
Quote:
Originally Posted by RamblinRoseRanc View Post
EK-
The fibro is pretty well controlled on a regular basis with Pristiq, neurontin & mega doses of flexeril. When i'm having a flare or the barometer is on the move, it isn't controlled at all and those are usually stay in bed days
The pinched nerve is a constant, never-ending pain. The asthma is under control for the moment, thankfully.
I am uninsured so everything I do is paid cash for- hence why I can't have anything done about the nerve.

I love the spoon theory, btw. It explains II (invisible illness. Love this term) perfectly.
I used to take neurontin. For me it seems there are very few meds that I can take at all without negative reaction, and those that I can take stop working after about six months. I have to take breaks from all my meds to give my body a chance to "reset" to the point where any one particular medicine will again do it's job. I can't take any gelatin capsules though, only chalky one, so the meds that are in capsules I have to take aprat and just ingest the innards. I am a giant wierdo.

I try to take as few man made meds as possible, as I worry about the side effects of synthetic chemicals, as well as I am allergic to most of them.

We used to have great insurance, but we are self employed and this past spring it jumped to 1100.00 a month, and that was with a big deductible and fewer things covered. We had to switch, so now it is up to us to pay for most things. I understand your position 100%.

Hubby's business has really been crippled over the past couple of years, so money is tight. He has spent thousands and thousands on me and my problems, I just feel guilty about asking for more when there isn't a cure for me anyway. Why have more tests done??
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  #42  
Old 07/22/11, 11:16 AM
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Join Date: Mar 2011
Location: KS
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Cabin Fever, it has been suggested maybe putting this thread as a sticky for those dealing with chronic illness to have a place for support. Is that possible, or maybe just a thread like Everyone Has A Story, only for a homesteading support group for those dealing with illness?

There are lots of illness support groups, but homesteading while sick is kind of a unique situation.

Just a suggestion....thanks.
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  #43  
Old 07/22/11, 02:07 PM
 
Join Date: Sep 2010
Location: SE Alabama
Posts: 553
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Originally Posted by earthkitty View Post
well god bless all of you and your families, proving that in spite of various difficulties we can take care of ourselves and try to be as self sufficient as possible.

No matter what happens, i'd rather be sick in the country than sick in the city!!!!
amen!
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  #44  
Old 07/22/11, 02:09 PM
 
Join Date: Sep 2010
Location: SE Alabama
Posts: 553
Quote:
Originally Posted by sunflower-n-ks View Post
The arthritis I am dealing with seems minor compared to some of the things you all are dealing with. I am glad I can still walk, and do need to remember to plan things and do things in stages.

Do any of you use a carry along stool of some sort? I can't stay on my feet for long stretches so end up setting to do anything that can be done setting down. Even weeding is done from a setting position. A stool that can be carried but then used to set on would make things so much easier. Especially the "getting up" part of setting down. Maybe with fewer bug bites also?
If you could find a wooden barstool, cut it to the right height for you, and screw two straps on the seat on opposite sides (something like nylon straps, I'm thinking). Wear it like a backpack between chores. Just remember it's back there, or you'll knock a lot of things down
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  #45  
Old 07/22/11, 04:28 PM
 
Join Date: Aug 2006
Posts: 1,416
Good idea - both the stool and the remembering it is back there...... LOL I can just imagine the destruction I would leave in my wake But, better than an upside down 5 gal bucket. That works, but is a bit too low for me to get back up easily.
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  #46  
Old 07/23/11, 12:37 AM
Freya's Avatar
Can't find bacon seeds
 
Join Date: Dec 2005
Location: On the move again
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Quote:
Originally Posted by earthkitty View Post
Cabin Fever, it has been suggested maybe putting this thread as a sticky for those dealing with chronic illness to have a place for support. Is that possible, or maybe just a thread like Everyone Has A Story, only for a homesteading support group for those dealing with illness?

There are lots of illness support groups, but homesteading while sick is kind of a unique situation.

Just a suggestion....thanks.

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  #47  
Old 07/23/11, 12:41 AM
Freya's Avatar
Can't find bacon seeds
 
Join Date: Dec 2005
Location: On the move again
Posts: 1,493
While we are on the subject... anyone else with kids that can't do it all either? For the most part mine cannot take up any of the slack that others might be able to.
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  #48  
Old 07/23/11, 01:09 PM
 
Join Date: Dec 2008
Location: Illinois
Posts: 8,264
[FONT="Comic Sans MS"]I also have chronic health problems. For those who who have multiple health problems look at the United Mitochondrial Disease Foumdation. If you have disease in three or more systems mito should be considered. Most docs don't have an understanding of mitochondrial diseases. I cannot tell you how many believe it is a disorder of children only.

Families with mito have a higher prevalence of depression, autism, bipolar, schizophrenia, and fibro. Autoimmune disorders are also pretty common. Biopsies, blood, and urine tests may show the disease but negative results don't rule it out in any way www.umdf.org
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