05/15/05, 01:59 PM
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Join Date: May 2002
Location: Indiana
Posts: 73
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Unfortunately, yes. My MIL died of it, :waa: but she was in her mid-70's, had stopped eating because she "wasn't hungry" and she was in very low condition by the time they finally figured out what it was. We still don't know if that was what she died of, or if the poor nutrition was part of it (try to get him to eat; she didn't let us know she wasn't till it was obvious, since she lived alone, and by then she was very weak). She also had a very high pain/discomfort tolerance, so she didn't realize how sick she was. Her blood levels, potassium, sodium, etc. got all out of balance, which led to a lot of complications. I hope and pray for your BIL that he is younger, maybe they've caught it in time to find treatments and he can live with it and become stronger with nutritional therapy. It seems to be a baffling ailment, at least the drs. here hadn't seen it often enough to be able to spot it right away or to tell us much about it. Only heard of one other older lady around here that died of it. My MIL was a wonderful, active, vibrant person until this, although she'd had radiation a few years previously for breast cancer, and we aren't sure if the radiation caused or precipitated this disease. It is very hard to see someone you love suffer with any illness, will keep you and him in prayer for healing.
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) but I just read a story on Revlimid that says it puts MDS into 'deep remission':
